Welcome Advocates to the Huntington's Disease Society of America's (HDSA) national advocacy online newsletter, which will contain regular updates on pending legislation as well as helpful tips for making home office visits, ways to contact your elected officials and much more.
HDSA is committed to educating our elected officials as well as medical and community leaders about the needs of our HD families.
HDSA asks that you take prompt action to ensure that our voice is heard by elected officials in Washington DC. We can make a difference not only in our lives, but in the lives of all those struggling against genetic diseases now and in the future.
HDSA ADVOCATES
If you have friends or family who would like to be an HDSA Advocate, please have them visit the HDSA national website at www.hdsa.org and click on "Become an HDSA Advocate", which is located on the Advocacy page.
If you have not already done so, please review the terms and conditions for HDSA advocates at the national website at www.hdsa.org and click on Advocacy and Become an HDSA Advocate. The terms and conditions can be found on the "Become an HDSA Advocate" page.
If you have any questions, please contact Advocacy and Family Services Coordinator Annie Sukhnandan at sukhnandan@hdsa.org.
Since the HDSA Advocacy Online Newsletters and Advocacy Email Alerts are available via email only, it is important that you keep us updated on any changes to your email address as quickly as possible. If you have spam filters on your email system, please adjust them so you can receive email alerts and Advocacy Online via the hdsainfo email address (hdsainfo@hdsa.org).
